Awareness · Education · Community

You are not alone in this.

CCN is the patient and caregiver advocacy community for those affected by cancer cachexia — the wasting syndrome that touches up to 80% of people with advanced cancer. We bring together community, education, and resources so no one faces cachexia without support.

CommunityWhat is Cachexia?
50%of all cancer patients are affected by cachexia — up to 80% in advanced diseaseSource: Fearon et al., Lancet Oncology, 2011
0FDA or EMA approved treatments — but there is hope, with multiple major clinical trials now enrolling
30%of cancer deaths are directly attributed to cachexiaSource: Baracos et al., Nature Reviews Disease Primers, 2018

Where to start

Find what you need

Whether you were just diagnosed, supporting a loved one, or looking for the latest research — we have a place for you.

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Understand Cachexia

Learn what cachexia is, its symptoms, and how it's managed.

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Join the Community

Connect with thousands of patients and caregivers in our Facebook group.

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Clinical Trials

Find actively enrolling cachexia trials and learn how to participate.

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Patient Resources

Watch educational videos and explore curated external resources.

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Community

Consider joining our Facebook group

Our private Facebook group is an online community where patients and caregivers can connect, ask questions, and share their stories.

Join the Facebook Group

Clinical Trials

A historic moment for cachexia research

After decades with no approved treatments, multiple major trials are now actively enrolling — including Pfizer’s pivotal Phase 2b/3 RIVER-mPDAC study, CatalYm’s VINCIT trial, Endevica Bio/Kalohexis’s TCMCB07 (Mifomelatide), and Aveo’s AV-380 (Rilogrotug). See what’s currently open and whether you or your loved one may qualify.

View Open Trials
9+Active or recently opened trials