Cachexia: a caregiver perspective
A caregiver shares his father's journey through pancreatic cancer and cachexia.
Education
Patient Resources
Educational videos from our YouTube channel, downloadable patient aides you can print and bring to appointments, and a curated library of high-quality external resources on cachexia.
YouTube Channel
Educational videos
Expert interviews, research explainers, and patient perspectives — published on the CCN YouTube channel and embedded here. New content added regularly.
Have a topic you want us to cover? Ask in our Facebook group — many videos are inspired by community questions.
Visit our YouTube Channel →Patient Aides
Downloadable handouts
Printable handouts and reports patients and caregivers can bring to appointments, share with family, or use as a starting point for conversations with their care team.
Have a handout you would like to see here? Let us know at cancercachexianetwork@gmail.com.
Curated Library
External resources
High-quality resources on cachexia from trusted organizations. We review and update this list regularly.
Clinical Guidelines
Scientific & Research
SCWD↗
Society on Cachexia and Wasting Disorders (SCWD)
The leading international scientific society focused on cachexia research.
New England Journal of Medicine↗
Ponsegromab Phase 2 Trial Results
Landmark Phase 2 results published in NEJM — the study that validated GDF-15 as a cachexia target.
JCSM / Wiley↗
Journal of Cachexia, Sarcopenia and Muscle
The primary peer-reviewed journal dedicated to cachexia and wasting disorders research.
PubMed↗
Exercise guidelines for older adults living with cancer and beyond
Peer-reviewed exercise recommendations for older adults living with cancer.
Cachexia Education
Nutrition, Exercise & Symptoms
American Cancer Society↗
Nutrition for People with Cancer
Practical nutrition guidance for cancer patients experiencing eating difficulties.
American Cancer Society↗
Benefits of good nutrition during cancer treatment
Why nutrition matters during treatment, and how to make eating easier.
American Cancer Society↗
Loss of appetite during cancer
Practical strategies for managing low appetite during cancer treatment.
Cancer.Net (ASCO)↗
Nutrition Recommendations During and After Treatment
ASCO's patient-facing nutrition guidance for during and after treatment.
Cancer.Net (ASCO)↗
Exercise During Cancer Treatment
ASCO's patient guide to safe, beneficial exercise during treatment.
PANCAN↗
Navigating Nutrition and Pancreatic Cancer — PANCAN Webinar
Pancreatic Cancer Action Network webinar with practical nutrition guidance for pancreatic cancer patients.
Patient Voice
Cancer Support Community↗
Cancer Support Community Voice of the Patient Report
CSC report capturing the lived experience of cachexia patients and caregivers (PDF).
Cancer Support Community↗
Cancer Support Community Voice of the Patient Video
Companion video to the Voice of the Patient report — patients and caregivers share their cachexia journeys.
Related Organizations
CCS↗
Cancer Cachexia Society
The scientific society of which CCN is the patient advocacy group.
CSC↗
Cancer Support Community
The largest professionally led nonprofit providing emotional support, education, and advocacy for people affected by cancer and their families.
PANCAN↗
Pancreatic Cancer Action Network
Leading nonprofit dedicated to advancing pancreatic cancer research and supporting patients and families.
LUNGevity↗
LUNGevity Foundation
The nation's leading lung cancer-focused nonprofit, with extensive patient education, support, and clinical trial resources.
Know of a resource we should include? Send us a suggestion.
Awareness
Cancer Cachexia Awareness Day
Each year on the last Friday of September, the cancer cachexia community comes together to raise awareness of a serious but often overlooked condition.
The first Cancer Cachexia Awareness Day was held on September 26, 2025, organized by the Cancer Cachexia Society. The 2nd annual day will be observed on Friday, September 25, 2026. CCN is proud to support and amplify the day — helping patients, families, and care teams recognize the signs of cachexia and start the conversation earlier.
Watch for unintentional weight loss, loss of appetite, persistent fatigue, loss of muscle or frailty, and low mood. If you or someone you love is living with cancer and experiencing these symptoms, talk to your doctor about cachexia.